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Deutsche Sarkom Stiftung
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Dear SPAGN Members and Friends,

We are delighted to welcome three new organisations to the SPAGN community. We are very pleased to have them join our growing international network and look forward to connecting, sharing experiences and strengthening patient advocacy together.

SPAGN Board of Directors & Team
Solitary Fibrous Tumor Foundation - USA
SFTF is a patient-led nonprofit dedicated to improving outcomes for people affected by solitary fibrous tumor, a rare soft-tissue sarcoma. They connect patients, caregivers, clinicians and researchers, provide education and support, and work to strengthen research and ensure that patients and caregivers have an active voice in research planning and the development of new treatment approaches.
Viața Continuă - Oncology Patients Association - Moldova
Based in the Republic of Moldova, Viața Continuă supports people affected by cancer and their families through patient advocacy, patient navigation, psycho-oncological and psychosocial support, education and reliable information. The organisation is also committed to strengthening support for people affected by rare and complex cancers, including sarcomas, and promoting meaningful patient involvement in healthcare, research and policy.
The Sarcoma Foundation New Zealand — New Zealand
The Foundation was established to support patients and families dealing with a diagnosis of sarcoma or another connective tissue tumour. They provide patient information, organise patient-centred events and webinars on different aspects of sarcoma care, and are working to develop regional support groups to strengthen support for patients and families across New Zealand.

 

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Sarcoma Patient Advocacy Global Network e.V./Assoc., 
Untergasse 36,
61200 Wölfersheim/Germany