Sarcomas are rare and complex tumours, and treatment in a specialised centre is often an important factor for diagnosis, treatment, and outcome.

The congress also highlighted how broad sarcoma care has become, with researchers, students, psychologists, and other healthcare professionals contributing to shared knowledge across borders and disciplines. A patient testimony during the congress further showed how important the patient voice is becoming in care and research.

This summary was written by Stéphanie Anzellotti, Cum Cura, Belgium. 

Cancer remains a major public health challenge in Europe. In response, the European Commission has placed cancer high on the policy agenda through initiatives such as Europe’s Beating Cancer Plan and the EU Cancer Mission. Both initiatives recognise the unique needs of vulnerable groups, including Adolescents and Young Adults, who face distinct clinical and psychosocial challenges that require tailored, multidisciplinary care.

This survey is being conducted by ICF at the request of the European Commission to develop an evidence-based model of quality AYA cancer care and map national provision of AYA cancer care across the EU.

Through this survey, the study aims to:

• Explore the current provision of AYA cancer care in your country
• Understand views on barriers, enabling factors, and good practices
• Collect information to develop evidence-based recommendations

📅 The survey will remain open until May 12.