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Deutsche Sarkom Stiftung
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Dear SPAGN Members and Friends,

Across our global network, new opportunities for learning, collaboration, and engagement continue to emerge for sarcoma patient advocates. In this edition, we are pleased to share a valuable capacity building course, highlight important collaboration within the cancer advocacy community, and remind you of key upcoming dates in the sarcoma calendar.

We are also excited as we look ahead to welcoming many of you soon at the SPAGN Annual Conference in Stockholm.

All the best from the
SPAGN Board of Directors & Team
🎓 Capacity Building Course: Conflicts and Competing Interests

Our colleagues at the European Patients’ Forum (EPF) have launched a comprehensive capacity building course designed to help patient advocates and organisations confidently navigate conflicts and competing interests in regulatory, HTA, and research environments.

This course provides practical tools, real case studies, and institutional perspectives from EMA, HTA bodies, and research stakeholders.

Who is it for?

  • Employee or volunteer of a patient organisation engaged in regulatory, HTA, or research activities (preferences) 
  • Individual patient advocates engaged in regulatory, HTA, or research activities 
  • Living in Europe. 

Course timeline highlights

  • Online sessions: Mid-June - Dec 2026
  • In-person sessions & policy roundtable at the European Parliament: Feb 2027
  • March 2027: Post-programme webinar 
  • December 2027: Follow-up survey on participant involvement after training
* Travel and accommodation for the in-person sessions are covered by EPF

🚨 Application deadline: 24 April 2026

🤝 WECAN – Strengthening Collaboration in Cancer Advocacy
The Workgroup of European Cancer Patient Advocacy Networks (WECAN) brings together 23 committed umbrella cancer patient advocacy organisations (incl- SPAGN) from across Europe.

WECAN represents patients across all cancer types, uniting efforts at a pan-cancer level to drive meaningful improvements and advocate for policies and practices that benefit every patient.

The WECAN network celebrated its 10th anniversary and formally established as a
Foundation in 2025, marking a significant milestone in our ongoing mission to strengthen our reach and impact across Europe.
📅 Upcoming Events 

April 2026

AACR Annual Meeting 2026- April 17, 2026 - April 22, 2026 
Teenage & Young Adult (TYA) Cancer Awareness Month- April 26, 2026 

May 2026

SPAGN Annual Conference 2026- May 1, 2026 - May 3, 2026 
TGCT Day of Learning- May 8, 2026
ASCO 2026- May 29, 2026 - June 2, 2026 

June 2026

EuSARC Annual Conference- June 4, 2026 - June 6, 2026 
MIB Agents FACTOR osteosarcoma conference - June 25, 2026 - June 27, 2026
Euro Ewing Consortium Network Meeting - June 29, 2026 - June 30, 2026 
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Sarcoma Patient Advocacy Global Network e.V./Assoc., 
Untergasse 36,
61200 Wölfersheim/Germany