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Deutsche Sarkom Stiftung
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Dear SPAGN Members and Friends,

We are pleased to share an important initiative focused on sarcoma: The CURE ID Treatment Registry for Sarcoma

CURE ID is a global, free platform developed by the U.S. Food and Drug Administration (FDA) in collaboration with the National Institutes of Health (NIH) in collaboration with several patient and clinical organizations. It enables patients, care partners, and healthcare professionals to share experiences with existing medicines used in new or off-label ways.

Sarcomas are among the rare cancers currently included in this pilot phase. By contributing experiences, our community can help generate valuable insights, highlight unmet needs, and potentially inform future research directions.

We warmly encourage you to explore the platform and consider sharing this opportunity within your networks. Every experience shared strengthens the collective sarcoma voice.

All the best from the
SPAGN Board of Directors & Team

 

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Sarcoma Patient Advocacy Global Network e.V./Assoc., 
Untergasse 36,
61200 Wölfersheim/Germany