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Deutsche Sarkom Stiftung
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Dear SPAGN Members and Friends,

We’re truly thrilled to welcome the wonderful new organisations that joined SPAGN in the first quarter of 2026 🎉

It’s so special to see our community continue to grow. Every new member adds experience, perspective, and energy — and that makes us stronger, more connected, and better equipped to create impact where it matters most.

We are grateful to have you with us and excited for the collaborations, shared learning, and collective action ahead. 

All the best from the
SPAGN Board of Directors & Team
The Bardo Foundation (USA) 
The Bardo Foundation is dedicated to improving outcomes for children and young people diagnosed with osteosarcoma. Established in memory of Bernardo (“Bardo”), the foundation focuses on accelerating research, improving access to clinical trials, and ensuring families have clear, reliable information at critical moments.
The Desmoid Project (USA) 
Created by patients for patients, TDP provides virtual support groups, facilitated peer sessions, in-person retreats, advocacy initiatives, and accessible educational resources for those affected by desmoid tumours. By elevating lived experience and addressing the psychosocial impact of rare disease, the organisation builds resilience, connection, and community.
The Ewing Sarcoma Institute (USA) 
 The Ewing Sarcoma Institute is dedicated to radically improving outcomes for Ewing Sarcoma patients by uniting the global community to accelerate collaborative scientific discovery and the development of breakthrough treatments.Its focus on partnership and innovation reflects the shared SPAGN commitment to advancing research and improving care.
Feliciana Mshanga Memorial Cancer Foundation (Tanzania)

FMMCF works to improve cancer prevention, early detection, patient support, and advocacy in Tanzania. Through initiatives such as Safari ya Tumaini & the Golden Hope Childhood Cancer Campaign, they address barriers to care, strengthens community awareness, and support patients and families facing rare cancers.
 
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Sarcoma Patient Advocacy Global Network e.V./Assoc., 
Untergasse 36,
61200 Wölfersheim/Germany