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Dear SPAGN Members and Friends,

We are pleased to share the latest contribution to our Voices of Sarcoma series, written by Silvia Kraft, Policy and Awareness Officer at Bone Cancer Research Trust (BCRT).

All the best from the

SPAGN Board of Directors & Team
Bone cancer advocacy work winning multiple awards🎖

In this article, Silvia reflects on nearly two decades of advocacy work by Bone Cancer Research Trust and what it means to be recognised by SPAGN for a second year.

The blog highlights BCRT’s long-standing commitment to improving outcomes for people affected by primary bone cancer through research, awareness, and education, and shares how this work was recognised at the SPAGN Annual Conference in Washington, D.C. with the Paola Gonzato Memory Award and a second-place Advocacy in Action Award.

It also explores the impact of key initiatives such as the National Sarcoma Awareness Project and the Ever Heard of Bone Cancer? campaign, which reached millions online and amplified real patient experiences.

Looking ahead, the article underlines the importance of patient advocacy and BCRT’s commitment to keeping its patient community at the heart of all activities as it approaches its 20th anniversary.

 
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