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Dear SPAGN Members and Friends,
The SPAGN Annual Conference 2026 is officially underway — and today, we are excited to open registration for our global gathering in Stockholm, Sweden, taking place from May 1st to May 3rd, 2026.
With 73 member organisations across all continents, this three-day event will bring together powerful learning, meaningful exchange, and inspiring collaboration. From expert-led medical and research sessions to practical capacity-building workshops, interactive formats, and dynamic discussions, the programme is designed to spark ideas and strengthen our shared impact.
We’re looking forward to creating new possibilities together and shaping the future of advocacy for the sarcoma community worldwide.
Register now and secure your place — we can’t wait to welcome you in Stockholm!
All the best from theSPAGN Board of Directors & Team
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📅 Register Now: SPAGN Annual Conference 2026 – May 1–3, 2026
📍 Location: Stockholm, Sweden — Karolinska University Hospital & The Elite Hotel Carolina Tower
🎓 Travel Grants: A limited number of travel grants will be available to help cover travel and hotel costs. Read more below.
🔬 Programme: Medical and research updates, capacity-building sessions, and interactive discussions — and you can help shape it. See details further below.
🤝 Networking: Connect with international experts and fellow advocates from SPAGN’s global community.
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| What Makes This Event Special ✨ |
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The SPAGN Annual Conference is a cornerstone event for the global sarcoma patient advocacy community, offering a vital platform to learn, connect, and share insights. As participants, you will:
- Discover key updates in sarcoma research and medical care 🔬
- Engage in capacity-building and advocacy-focused sessions 🤝
- Connect with international experts and advocacy colleagues 🌐
- Take part in workshops, marketplace sessions, and panel discussions 🛠️
This event is designed to strengthen your work, inspire collaboration, and expand the collective knowledge and impact of our global network.
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| 📜 Help Shape the 2026 Conference Programme |
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As we prepare the agenda for the SPAGN Annual Conference 2026, we warmly invite all member organisations to contribute ideas and suggest topics you would like to see included.
Your input ensures that the programme reflects the needs, priorities, and expertise of our global community.
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| 🏆 Advocacy in Action Award & Paola Gonzato Memory Awards 2026 |
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Following the launch of this year’s call to action, we invite all member organizations to take part in the Advocacy in Action Award (AIAA) and the Paola Gonzato Memory Award — two initiatives that spotlight outstanding advocacy achievements within the sarcoma community.
About the Advocacy in Action Award
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All SPAGN member organizations are eligible to apply. Projects must be:
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Sarcoma-specific (STS, Bone, GIST, Desmoid, or Chordoma)
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Completed or ongoing (not in planning)
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Focused on measurable advocacy impact.
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🏅 Prizes:
1st Prize – €2,000 | 2nd Prize – €1,500 | 3rd Prize – €1,000
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About the Paola Gonzato Memory Award
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This special award celebrates advocacy excellence in bone sarcomas.
Eligible projects must be:
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Submitted by regional or national SPAGN member organizations
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Completed, evidence-based, and advocacy-driven
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Focused on tangible improvements in care or quality of life
🏆 Prize: €3,000 awarded to one winning organization.
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| Curious about what happened at last year’s gathering? 👀 |
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Explore the highlights of the 15th SPAGN Annual Conference, held April 11–13, 2025, in Washington, D.C., USA — our first Annual Conference outside of Europe.
The event brought together 130 sarcoma patient advocates, experts, and partners from more than 30 countries, strengthening global connections and setting new standards for collaboration in sarcoma advocacy.
You can find the full session recordings and conference report below.
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Follow us on our Whatsapp Channel! Join here!
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Sarcoma Patient Advocacy Global Network e.V./Assoc.,
Untergasse 36,
61200 Wölfersheim/Germany
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