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German Sarcoma Foundation
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Dear SPAGN Members and Friends,

With CTOS 2025 just around the corner, we are pleased to share how patient advocacy will once again be represented at this important international meeting. As in previous years, SPAGN will be present on site to support visibility, connection, and exchange within our global sarcoma community.

We look forward to meeting many of you in Boca Raton.

All the best from the
SPAGN Board of Directors & Team
👥 Patient Advocacy Lounge

📍 Estate Ballroom II & III, Mizner Convention Center

🗓 Thursday, November 13 – Saturday, November 15, 2025

🕣 Open daily from 8:30 am – 5:00 pm

The Lounge will once again serve as a welcoming space where patient advocates can come together, meet colleagues from around the world, and engage with attendees throughout the meeting.
🖼 Patient Advocacy Poster Wall

We are happy to share that we have receive 30+ posters from our member organizations that will highlight:

  • Advocacy initiatives

  • Awareness and education projects

  • Community-driven activities

  • Organizational presentations

We warmly invite all CTOS participants to visit the Poster Wall and explore the diverse work being carried out across our network.
📄 Featured Scientific Poster — SPAGN Diagnosis Pathway Survey

We are also pleased to share that findings from the SPAGN Global Sarcoma Diagnosis Pathway Survey will also be featured in the scientific poster sessions:

Poster Number: P 229
Title: Determinants of Diagnostic Interval in Epithelioid Hemangioendothelioma: A Linear and Quantile Regression Analysis of Patient-Reported Data from the SPAGN Global Sarcoma Diagnosis Pathway Survey

Poster Reception:
📅 Thursday, November 13, 2025
🕠 5:30 PM – 6:30 PM EST
📍 Grand Ballroom

We encourage all attendees to visit the poster during the reception to learn more about this important analysis.
🎤 Sarcoma P31 Workshop

We are proud to share that Denise Reinke - Co-chair of SPAGN's Board of Directors will participate in a panel discussion during the SARC semi-annual meeting at CTOS, bringing the global patient voice directly into a key conversation.

She will provide the patient perspective on Project P31 — an initiative designed to assess progress, identify gaps, and outline research needs across the entire sarcoma research landscape. 

Session Details:
📅 Wednesday, November 12, 2025
🕞 3:30 PM – 5:30 PM EST
📍 Royal Palm Ballroom
📌 Information Tables
All patient groups attending CTOS are invited to display brochures or informational materials on the tables provided in the Lounge.

As this opportunity is open to every patient organization at CTOS, we encourage you to bring your materials and add them to the shared information space.
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Sarcoma Patient Advocacy Global Network e.V./Assoc., 
Untergasse 36,
61200 Wölfersheim/Germany