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Deutsche Sarkom Stiftung
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Dear SPAGN Members and Friends,

As we enter the final phase of Sarcoma Awareness Month 2025, we come together under a message of solidarity and strength: Rare, But Not Alone.

From 21–31 July, we highlight the global sarcoma network — 71 member groups, dedicated advocates, patients, survivors, caregivers, and allies united across the world.

All the best from the
SPAGN Board of Directors & Team
Rare but not alone 💛
This week, we will share:
  • Stories of connection and collaboration from SPAGN members and supporters
  • Resources and support tools to reinforce that no one faces sarcoma alone

💡 Don't Forget To Test Your Knowledge!
Are you ready to advocate for better diagnosis? Take our quick 3-Question Quiz to learn when symptoms could signal something serious.
Events to get involved in 🙌

📸 Light Up for Sarcoma – July 25

Join us in illuminating landmarks and lighting up social media to honor everyone affected by sarcoma. Whether you light a candle, share a photo, or post a message — together, we can make sarcoma visible.
 
🌍 Featured by MIB Agents: SPAGN’s Global Advocacy in Focus

This Sarcoma Awareness Month, our work at SPAGN was featured by MIB Agents in a special blog post highlighting the evolution of our network from a European alliance to a global movement.

Written by our Executive Director Kathrin Schuster, the piece explores how SPAGN has united voices across five continents to advocate for better care, raise awareness, and promote patient-centered research. It also shares insight into our strategic goals and the importance of collaboration across borders and healthcare systems.

 

We are now on BlueSky! Please help us with a follow and sharing some of our recent posts! 
 

 

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Sarcoma Patient Advocacy Global Network e.V./Assoc., 
Untergasse 36,
61200 Wölfersheim/Germany