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Deutsche Sarkom Stiftung
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Dear SPAGN Members and Friends,

We’re excited to kick off the month with some important updates! First, we’re thrilled to introduce two new SPAGN members — check them out below!

Next, a friendly reminder: the deadline for submitting your project for the Advocacy in Action Award and the Paola Gonzato Memory Award is fast approaching—March 9th is your last chance to apply! 🚨

Additionally, don’t miss our latest blog post on advocacy in sarcoma care—a must-read for anyone passionate about making a meaningful impact in the sarcoma community.

Stay informed, stay involved, and keep reading for all the details!

All the best from the
SPAGN Board of Directors & Team
đź‘‹ Welcome to Our New Members
We are excited to introduce EHE Foundation and Clear Cell Sarcoma Foundation as the newest members of the SPAGN community. Both bring valuable expertise and a shared commitment to improving sarcoma care, and we are thrilled to have them join us!
The foundation is committed to supporting those affected by clear cell sarcoma, a rare and aggressive soft tissue cancer. Through advocacy, funding research, and providing resources, they are improving the lives of patients and families.
The EHE Foundation is dedicated to raising awareness about Epithelioid Hemangioendothelioma (EHE), a rare cancer that affects blood vessels. Their work focuses on advocacy, education, and advancing research to improve the lives of patients with this rare disease.
✨ Patient Advocate Spotlight: Karin Arndt’s Journey from Survivor to Advocate
Our latest blog post is live! In this post we feature Karin Arndt, a remarkable patient advocate whose personal journey with clear cell sarcoma has shaped her decades-long dedication to helping others facing similar battles. Karin’s story is one of perseverance, compassion, and commitment to improving care for sarcoma patients. As a volunteer for the German Sarcoma Foundation’s patient hotline, she has become a trusted voice for thousands of patients and families in need of support and guidance.
🚨 Last Call: Awards Applications Deadline – March 9, 2025


This is your final reminder to apply for the Advocacy in Action Award 2025 and the Paola Gonzato Memory Award. These prestigious awards recognize organizations that have made extraordinary contributions to sarcoma patient advocacy, education or support.


Deadline to apply for both awards: March 9, 2025
Winners will be announced at the SPAGN Annual Conference 2025.

           Don’t miss your chance to be honored for your incredible work!
Mark Your Calendar: Exciting Upcoming External Events
 
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Sarcoma Patient Advocacy Global Network e.V./Assoc., 
Untergasse 36,
61200 Wölfersheim/Germany
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