Reflections of 2024

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Dear SPAGN Members and Friends,

This year was a monumental one for SPAGN as we celebrated a significant milestone—15 years of dedication and advocacy! Here's a snapshot of what we achieved together.

All the best & Happy Holidays from the
SPAGN Board of Directors & Team

Groundbreaking Research and Publications 💡

Global Sarcoma Diagnosis Pathway Survey: Over 1,600 participants (and counting!) contributed their experiences, driving forward patient-centered research. The survey is still open for 2 more days, so don’t miss the chance to add your valuable contributions!
Two Landmark Publications:
- What is a Sarcoma Specialist Center? This first-of-its-kind paper establishes global standards for specialist centers through multidisciplinary research.
- Setting the International Research Agenda for Sarcomas with Patients and Carers: Highlights the invaluable contributions of patients in shaping sarcoma treatment innovations.

Connecting Globally 🌐

Gathered 68 member groups from six continents at our 14th Annual Conference in Rome.

Represented patient advocacy at 4 major global events:
- ESMO Sarcoma & Rare Cancers: Led sessions and organized an information booth.
- EMSOS: Delivered presentations and facilitated an information booth.
- ASCO: Attendance and networking.
- CTOS: Hosted the Patient Advocacy Lounge and presented posters.

Collaborating in New Ways 🤝

Extended our reach to China and Russia through the Global Diagnosis Pathway Survey.
Strengthened ties with Latin America via the Sarcommunicándonos initiative.