Dear SPAGN Member Groups, Patient Advocates, and Friends,
We are delighted to announce that patient advocacy will once again have a valued presence at the Connective Tissue Oncology Society (CTOS) Annual Meeting. This year, we are pleased to host the Patient Advocacy Lounge at CTOS 2024 in San Diego:
Patient Advocacy Lounge Room Balboa ABC, Second Level, Manchester Grand Hyatt San Diego Open from Thursday, November 14 – Saturday, November 16, 2024, from 8:30am to 5pm
The lounge will serve as a welcoming space for all CTOS attendees and especially for patient representatives to connect and engage with other participants of the conference. We look forward to seeing you there!
We warmly invite you to join us in the Patient Advocacy Lounge. Here’s a preview of some activities we’re planning for the lounge:
1. Check out the Patient Advocacy Lounge and enjoy more than 30 posters on patient advocacy, browse the information material on display and relax with a cup of coffee and a cookie.
2. Join the Patient Advocacy Reception – have a casual chat over a glass of wine and a snachk with patient advocates from around the globe - mix, mingle and find new friends! Thursday, November 14, 5:00 – 6:30pm,
Patient Advocacy Lounge
3. Have your questions answered on “How to interact with patient advocates” during the Sunrise Mentorship Program on Thursday morning. Thursday, November 14, 7:00-8:00m, Seaport Ballroom ABCD, by Kathrin Schuster & Sara Rothschild/Life Raft Group
4. Find out more about sarcoma diagnosis! Take a look at our poster in the poster hall and find out more about the reality of sarcoma diagnosis globally from more than 880 patients from 40 countries.
Please note: These will be preliminary data, the survey is still open.
