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Dear SPAGN Members and Friends,

the SPAGN Knowledge Spot webinars are a source of highly accessible information for well-informed, knowledgeable non-specialists - such as SPAGN's national patient advocacy groups.

You are invited to join us to listen, learn, ask and discuss with us on two highly relevant topics for sarcoma patient advocates - find out more below and here.

All the best from the
SPAGN Board of Directors & Team
Knowledge Spot: Understanding Health Technology Assessment

HTA (Health Technology Assessment) is a process to determine the value of medicines, vaccinations, procedures or health technology. The purpose is to help decision-makers make an informed choice in health-related political questions. This includes the question on whether or not the drug/vaccine/procedure should be reimbursed. And this has direct implications for patients!

Our speaker for this webinar will be Karen Facey. Karen is actively involved in HTA processes in Scotland and Wales and part of relevant bodies and faculties. She will be giving an overview on what HTA is and how patients can be involved in the processes.

Her talk will be followed by two patient advocate speakers from the UK and France, Jayne Bressington and Estelle Lecointe-Artzner. Both will be providing insights on the processes and opportunities for patients to be involved in HTA decisions in their countries.

If HTA is a more or less unknown field to you, don’t let the technical terms scare you! As patient advocates, we can have a say and influence political decisions that will or might have major impact on the lives of sarcoma patients!

Join our webinar, learn about HTA, hear about examples from France and UK – and ask any questions you might have:

Understanding Health Technology Assessment
October 4, 2023, 5pm CET / 11am ET


  • Basic introduction about HTA and 
    what patient involvement & patient evidence can look like
    Karen Facey, HTAi, UK
  • HTA processes in the UK and France
    Jayne Bressington, PAWS GIST / GIST Cancer UK & 
    Estelle Lecointe-Artzner, Info Sarcomes, France
  • Outlook on HTA harmonization in Europe: 
    Implementation of the HTA regulation in Europe 2025
    Karen Facey
  • Q&A and discussion
Register here!
Knowledge Spot: Open clinical trials in sarcomas
For rare cancers as sarcomas, clinical trials are an important part of the treatment concept, as standard therapies are often limited. They might be able provide an improved care for current patients, but they will certainly help sarcoma patients in the future.

Taking part in a clinical trial can be a good choice. But it is often difficult to find a clinical trial that is right for you. We have invited two expert speakers to talk about and inform us about current, ongoing clinical trials in sarcomas – ranging from soft tissue sarcomas to GIST to desmoid tumors to TGCT to bone sarcomas. 

The good news is: There’s a lot going on!

Our speakers are:
Dr. Nathalie Gaspar is a paediatric oncologist at Gustave Roussy Cancer Campus in Villejuif, France. She is in charge of bone sarcomas, cancers with peak incidence in the AYA population, from biology to clinical care. Dr. Gaspar will be talking about clinical trials in bone sarcomas.

Prof. Robin Jones is a medical oncologist with a specialist interest in bone and soft issue sarcomas. He has been principle investigator on numerous phase I, II and III trials. He is Consultant Medical Oncologist and Reader at the Royal Marsden and ICR, London, UK.
Prof. Robin Jones will be talking about open clinical trials in soft tissue sarcomas and GIST (incl. desmoids and TGCT).

Join us for this webinar and learn more about current clinical trials in sarcomas:

Open clinical studies in soft tissue sarcomas, GIST and bone sarcomas
November 21, 2023, 5pm CET / 11am ET

Register here!
Patient Advocacy @CTOS 2023
Want to learn more about what's going on at CTOS 2023 for patient advcoates
and how you can be involved?

Read more here!
Upcoming Events and Webinars
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Sarcoma Patient Advocacy Global Network e.V./Assoc., 
Untergasse 36,
61200 Wölfersheim/Germany
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